2022 CES Conference / Congrès 2022 de la SCÉ

Patient-Oriented Research (POR) is an important foundation of evidence-informed health care in Canada and globally. POR is research that involves, and is informed by, patients' needs and priorities at all stages of health research, from initial conception to the dissemination and implementation of knowledge. The Canadian Institute for Health Research (CIHR) recognized the importance of POR in 2011 with the launch of the national Strategy for Patient-Oriented Research (SPOR). As such, eleven provincial/territorial SPOR SUPPORT Units have been established across Canada. This presentation will focus on the general principles and three distinct case examples (two evaluations of SPOR SUPPORT Units and one evaluation of a separate health research program) of including patients in the evaluation of health research programs. This distinct approach to evaluating health research programs will show the value of including a diverse range of patients in health research program evaluations and how evaluation needs to catchup to this notion.